Mom and I are heading out to L.A., California on August 2nd for the consultation appointment, finally on the schedule with the doctor doing the ketamine treatments at USC. :) Big deal, pretty excited, pretty nervous, but it will be nice to get some answers and hopefully some solutions. It is so EXPENSIVE, too! Hopefully if the treatments work and I'm getting regular boosters however often they're needed, there will be a clinic working in Arizona by that time to cut down on travel costs. We're looking in to some hotels nearby that advertise discounts for people visiting for hospital appointments, so that will help since we'll likely just be there overnight for the consultation. We won't know anything about the treatments until after this appointment.
I have Reflex Sympathetic Dystrophy, a chronic pain condition that affects the nerves in all my limbs. It causes constant severe pain. From the time it started to a diagnosis to the many years of living with it my mom and I felt alone and confused in the process of learning to manage it and, even harder, how to TREAT it. I don't want others to feel alone so this is my way to reach out and share my experience through all the procedures, surgeries, medications, etc. Certainly a learning process…
Tuesday, July 10, 2012
Appointment! :D
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